I know of no suspicious or theoretical problems with magnesium citrate or calcium lactate. CMT can cause a lot of pain and inflammation. It featured an image of a body and its nervous system, surrounded by words and images representing CMT symptoms 27 of them. Eating significantly less than your BMR may actually stunt your weight loss efforts. Worst mistake of my life was going vegan with CMT. Protein is necessary but shouldnt be consumed excessively, as this can lead to weight gain. Ive been trying new recipes and reviving old ones since returning from the conference. Charcot affects the bones, joints, and soft tissues of the foot or ankle. Required fields are marked *. Most antibiotics in common use are not associated with neuropathy, even with prolonged use. None of the other medications listed are associated with weakness or neuropathy, but your case sounds more complex than many because of the antiphospholipid syndrome. First of all, youre not alone! Most people with this risk take daily folic acid supplements and this formulation appears to be an attempt to supply a more complete but unproven formulation. Its terrible! Climbing the stairs is not required. fruits such as strawberries, blueberries, cherries, and oranges. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. In this way, green tea helps you losing bodyweight even you fail to do any exercise or involve in low-intensity exercise. If you feel you may not be meeting all of your vitamin and mineral requirements, a daily multivitamin is the best bang for your buck and will provide all the vitamins and minerals you need without excess. Any Help for me? Who knew that something so delicious would also help with muscle recovery? Although there are no specific reports of vinblastine toxicity in CMT, it likely is a very high risk agent, especially if the man has CMT1A. We are grateful for your generosity in supporting our mission! Sign up now! After the conference, I took a second look at certain aspects of my life that I had never considered as important to addressing CMT. For most people, the low doses of quinine contained in tonic water are not enough to trigger serious side effects. Alternatively, you may try for other green leafy veggies, like swiss chards, collards, and kale to include in your diet. mashed.com - Jennifer Goldsmith. It is tough trying to be vegan and then being told that you need milk and eggs to get/ strong. While there are thoughts on how some of these medications work, how Neurontin stops pain is not clear. More importantly, B12 levels and other related B12 functions are frequently checked because low levels can result in a variety of neurologic problems, including neuropathy. It is not easy to predict which medication will work for which patient in advance. B vitamins are the most important players in the energy production game and they are very easy to get from food. Obesity and Charcot Marie Tooth symptoms may even increase your risk to suffer from diabetes, which causes further damages to your body parts, along with your lungs and heart. Chia and flax seeds were new to me. Reglan is associated with other neurological side effects, most commonly movement disorders, which are usually recognizable by treating physicians. Midazolam (Versed) is a medication used to assist in the sedation, reduction in anxiety, and impairment of memory in patients undergoing procedures (including endoscopies). Vincristine in particular is an exceptionally high risk for CMT1A patients and can result in severe, irreversible neuropathy after one or two standard doses. The treating MD should have mentioned these possibilities. Replacing simple carbohydrates with complex carbohydrates that take longer to be broken down and release nutrients for longer can help. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Its possible that more local weakness than average will be produced in CMT patients, especially if the injections are in the legs. Wash your hands for at least 20 seconds with soap and warm or cold water before, during, and after preparing food and before eating. Of interest is the fact that other anti-seizure medications, like phenytoin (Dilantin) or carbamazepine (Tegretol) also treat pain in some patients with neuropathy. If you have a tough day, making small progress and steps forward is always better than staying off track. Most people dont have problems with this drug unless they take it for an extended period of at least a month or more. I used to eat it regularly, except I didnt include celery, flax seeds, or beets. It is a theoretical issue whether patients with CMT should avoid statins, as there is no evidence that statins worsen existing neuropathy. I havent seen my neurologist yet to receive instructions. Im trying to do a lot of exercises in the water. In addition to complex carbohydrates, micronutrients play an important role in providing your body with usable energy from food. One of the challenges facing people with CMT is fact that CMT muscles can take longer to recover from exercise. . Dose C.M.T affect your ability to eat normally thank you. I am 43 years old and have CMT. I enjoy the deep water exercises because my feet dont touch the bottom and I love being suspended in the water. Keto has helped me stabilize my body and I train 6 days a week in the gym with no ill side effects except growth in muscle. avoiding caffeine (found in tea, coffee, cola and energy drinks) and nicotine (found in tobacco) if you have tremors (shaking) - they can make this worse avoid medicines that can cause nerve damage - Charcot-Marie-Tooth UK has a list of medications to avoid or use with cautionif you have CMT Prilosec has been reported to cause neuropathy and/or myopathy (muscle disease) in a very small number of patientsnot enough to know if the effect is real or not. There has been considerable research on vitamin B12 and some forms of B12 such as methylcobalamin and neurologic function. Consider joining your local YMCA and take their water aerobics classes. If it took you nine months (March to December) to gain the weight, you can count on it taking at least nine months to lose again. There are no contraindications with dental anesthesia. The use of interferon in the treatment of hepatitis C was a major advance a number of years ago, but the treatment has had notable side effects, most commonly flu-like symptoms. Dr. Thomas will be available from Monday, April 15th to Friday, April 19th to answer questions about CMT. It turns out that Popeye has been right all along! Three small portions of dairy a day, especially reduced-fat versions, are also important. Restricting intake of the foods and beverages listed above help some individuals control IC/BPS symptoms. The painful reaction experienced is a very unusual reaction to amitriptyline (Elavil). That said, it is most likely going to take even longer because weight loss is inherently more difficult than weight gain. Ive had CMT for 45 years and Im only 48 so I have a little experience. The only notable interaction is with the treatment and certain HIV-drugs, which I presume are not an issue. When I sleep. The genetic defects in most demyelinating types of CMT are known, as are the encoded proteins and their functions. Green tea, which contains antioxidants and may help protect the muscles against damage during exercise and boost metabolism. Most toxic exposures are from much higher dosages, mostly of 250 mg or more a day. Positively, you may easily manage your body weight and other major Charcot Marie Tooth symptoms by simply having a healthy yet balanced diet combined with a tailored exercise plan.(1). Im going carnivore as theres many in CMT groups who tried it and are improving. Young Lee Other than B6, the B vitamins have no known risk. Unfortunately, none of these medications work all the time for all patients; some work for some patients, others work for other patients. Broyhill Leadership Conference 2023 registration is open. Get plenty of sleep! Can anyone help me? As far as we know, there are no specific vitamins that help with CMT. info@cmtausa.org The agent was placed on the list based on the experience with other types of patients receiving the drug as part of their chemotherapy. Problems have also been described with some even newer antidepressants, such as Effexor. Here, peripheral nerves are those, which transmit nerve signals to different body muscles from the brain for controlling body movement and transfer sensory information to the brain from other parts of the body. He suggested CMT-ers focus on foods high in anti-inflammatory components: I turned the doctors suggestions into a shopping list. For those patients, we must be concerned about vaccinations. There is no neurological reason for that symptom. My digestive system is shot.. the atrophy ..ugh. Where possible, salt, fat, and sugary food and drinks should be minimized. This is one of the most common things Ive heard from patients and clients in recent months. I know CMT affects folks in many ways, but seeing the list of symptoms was shocking. These foods digest too quickly and cause a spike in your blood sugar. In the messages found on MV's devices, the court documents say that Otwell established six 'rules' for the 13-year-old to follow which included sending him good morning messages and explicit . Take 5,000 IU vitamin D3 daily or get ample sun. We recommend a heart-healthy version of scrambled eggs 1 whole egg and 1 egg white, scrambled together with oz of lowfat cheese. Hi im 34 and have cmt type 1A, iv read alot of bad things how people end up life wise that have cmt but there must be people out there that life a long an able life, i would love to hear from people, regards Grant. I am 5' 1" weighing 155 lbs. Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry. A Study on Neurotoxic Medications Most associations have not been proved after larger scrutiny. Three small portions of dairy a day, especially reduced-fat versions, are also important. The only thing to be aware of and to tell the doctors about is that you will not recover from anesthesia as quickly as a person without CMT, so they need to take their time in moving you. They are low impact and even if you dont swim, you can safely exercise because floatation belts are provided. It's been my bible and beacon of hope for managing my CMT symptoms. Perhaps it is because people who eat more protein tend to burn more calories a day 71 calories a day to be exact, according to British researchers. [ 1, 2] These disorders are also known as hereditary motor and sensory neuropathies (HMSNs); they are distinct from hereditary sensory neuropathies (HSNs) and hereditary motor . Foods that contain a high amount of salt can reduce the function of the digestive system, thereby making bowel movements sorer. It will raise blood sugar quickly and keep it high for a long time because the fat takes a while to digest. I think what helps me that this cmt2 is so slow advancing in my case. This topic is quite controversial. A good occupational therapist may recommend some tools to facilitate hand and finger use. Where possible, salt, fat, and sugary food and drinks should be minimized. In some cases, where this was not recognized promptly and treated effectively, death or hypoxic encephalopathy resulted. No recognized treatments or precautions have yet been accepted. Cyclosporin A can cause the same problem, but even more rarely. The hammertoes seen in CMT are usually as a result of muscle imbalance and structural misalignment. Soda is one of the most popular foods around and, according to the experts at the Mayo Clinic, it's also one of the most harmful if consumed too often. Pastries, cookies, and other treats with refined sugar are low in fiber . The damage caused by the disease leads to sensation loss and muscular weakness, along with other similar types of symptoms.(1). These have not been tested in clinical trials for CMT patients, butinclude: Charcot-Marie-Tooth Newsis strictly a news and information website about the disease. There were a few scattered suspicions with Tagamet but not Zantac. Along with disc problems and Arthritis in lower back. There is no evidence that one statin is any better or worse as a risk factor for neuropathy, so Crestor is part of the group even without a clearly reported case. The next day I felt horrible and my legs were so weak I thought they were going to collapse under me. Thrombocytopenia is a drop in the bloods platelet count that can lead to internal and external bleeding as well as a related condition that can cause permanent kidney damage. What would be better than pairing pineapple slices with any low-fat cottage cheese to enjoy a protein-rich nutritious snack for weight loss and improving Charcot Marie Tooth symptoms. I dont have a recipe. There are no reports of neuropathy and Avastin in association with macular degeneration applications. French fries and potato chips. People with CMT experience fatigue as a result of the extra effort required to . Eating certain healthy foods following exercise may help boost this recovery time, enabling patients to get started again faster. The FDA has banned the use of quinine for nocturnal leg cramps because of its serious side effects. Simple carpal tunnel syndrome is common and treatable in patients with neuropathy of any cause, including CMT. Consuming foods that are high in fat limits the growth of good bacteria in your gut. It doesnt do what my brain tells it to do and its surprisingly a relief now to know why I always felt that way. Good: Shellfish. In most instances any weakness produced should be very local to the injection site and temporary. Foods rich in Indole-3-carbinol: Indole-3-carbinol (I3C) is a . It reminded me of one of my takeaways from the. Hi Additionally, taking megadoses of any substances is not advisable. There are a few others with minor or preventable risk, such as Isoniazid (INH). 30 foods to avoid Yogurt with fruit Plain yogurts are a good source of probiotics, which is great for your gut health. Exercise helps create a larger calorie deficit and has more benefits including muscle health, cardiovascular health, mental health, etc., so it is important to exercise regularly on this path to weight loss. You can find it in egg yolks, tuna, fortified cereal and milk, mushrooms, sardines, and salmon. Vitamin K Vitamin K is a precursor for bone metabolism. I think the whal's diet could help if you are diligent enough. Naratriptan (Amerge) is a commonly prescribed migraine treatment in the triptan class and is similar to Imitrex (sumatriptan). Ours also has a ramp down into the shallow end for people that cant use regular ladders. Five years after arriving home from my three-year RTW cycle, I've finally written a book! Ive CMT & a Pilates instructor. #1: The book! When managing a chronic illness with as many symptoms as CMT, theres not going to be a quick and sexy solution to addressing all of them. The drug does have a variety of side effects and unusual complications that should be considered before use or withdrawal of use. Both may have a variety of side effects, which are complicated by the fact that most who take the pill already suffer from an acute migraine. Raghav Govindarajan, MD, a neuromuscular physician at the University of Missouri, said at the conference that although he works at a CMTA Center of Excellence, many factors outside the clinic affect how well a person lives with CMT. (Photo by Young Lee). The vitamins included are folate, vitamin B6 and vitamin B12, which qualifies the pill as a food supplement and not a drug. In most cases, foods that are high in calories will give a calorie count of about 225 calories per 100 grams on the label. Doses in excess of 50 mg/day are unlikely of added benefit to CMT patients. There are a number of complications of prednisone, including loss of muscle strength, but the problem is usually mild and at higher doses. Nitrofurantoin (Macrodantin) is an antibiotic used for a variety of problems, but more extensively in past decades for UTIs. Glenolden, PA 19036. Recent studies have confirmed what five year olds have been telling us for years chocolate milk is a health drink. Cured meats, which are meats treated with salt and nitrate or nitrite, such as dry-type summer sausages, pepperoni and salami. Some of these are very serious. Some research suggests that fish high in omega-3 fatty acids (but not omega-3 supplements) are linked to a lower risk of gout flare-ups. This is a complex situation. It is characterized by inherited neuropathies without known metabolic derangements. Its rare that one of these posts gives me information I hadnt heard before, but, It featured an image of a body and its nervous system, surrounded by words and images representing CMT symptoms 27 of them. I eat a lot of fruit juices sugar in it. There are no reported contraindications for persons with peripheral neuropathies taking these over-the-counter drugs. Yes! This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. You may feel energized at first, but once your body burns off that sugar youre likely to feel more tired. Taking antibiotics for a prolonged period sometimes puts one at different risks than the usual five- to 14-day course prescribed for most infections. Join the Global Registry for Inherited Neuropathies (GRIN) and help develop drugs, gene therapies, and clinical trials for CMT and other Inherited Neuropathies! Dexmethylpenidate (Focalin), approved in 2001, is chemically similar to Ritalin, a drug familiar to many. Even if you are somewhat imobilized, many have chair lifts to get you into and out of the pool. The drug, however, is associated with other direct lung (pulmonary) toxicity of differing types and is more than likely the cause of your problem. Check the Nutrition Facts Label. Even as a child I could taste what I thought was pennies or copper. However it came to be, Worcestershire sauce is a must-have item for any cook. Nitrous oxide or laughing gas is on our neurotoxic drug list, but this is only considered toxic if the person abuses the drug or has a vitamin B deficiency. It will be helpful to anyone who employess it, as well as me. It does not provide medical advice, diagnosis or treatment. Therefore, you should try to opt for low fat alternatives to foods that can be high in fat. My feet cramp. Excluding the aforementioned food items to eat, Charcot Marie Tooth patient should make sure to intake plenty of juicy fruits and veggies, along with protein-rich food items. How Common Is Charcot Marie Tooth Or Is It A Rare Disease? When an immune attack on nerves is triggered in a CMT patient, any nerve damage may add to the underlying neuropathy. Venlafaxine (Effexor) is a popular and widely used antidepressant that is also used to treat neuropathic pain, especially well studied in patients with diabetic neuropathy, although the drug has no current specific FDA indication for this use. Copyright 2023 Hereditary Neuropathy Foundation | 1641 3rd Avenue #28K New York, NY 10128 | Powered by. We should note that these studies were done on non-CMT muscles, so we cant offer any guarantees as to how it will work for CMT muscles. My 7 year old granddaughter was diagnosed with CMT in the spring. Once you and your doctor decide to stop the medication, the dose should be gradually reduced over a few weeks to avoid the chance of withdrawal symptoms. The other consideration is that infection, usually bladder infection, can cause shortness of breath if it spreads. Your physician is correct that too rapid a withdrawal can cause unpleasant symptoms. There are no contraindications for anesthesia. The first is tacrolimus (FK-506, ProGraf), which rarely causes a neuropathy with demyelinating features, probably by triggering an immune reaction. Now there is! Some of these agents have been studied as treatments for neuropathic pain and showed no signs of making patients worse. Make a donation to the Hereditary Neuropathy Foundation to help find treatments and cures for those living with Charcot-Marie-Tooth and Inherited Neuropathies. Eight ounces of lowfat chocolate milk has 158 calories, 2.5 grams of fat, 26 grams of carbs, 425 grams of potassium, and 8 grams of protein. Keto has proven to work for me. See a Physical Therapist. PO Box 105 19. The risk of worsening the neuropathy appears to be very small, but incompletely known, while the benefit of the drugs is well established. However, deep venous thromboembolism (DVT) is one rare but potential side effect of the treatment. This has proven successful for me personally. It's a super easy and great way to spread awareness and support CMT Research. Oysters. The most important thing is to just keep going, stay consistent and try not to let the slow progress derail you. I use one part chia seeds to a little more than four parts liquid. None of these drugs, such as midazolam (Versed), are on the list of agents with increased risk. Most seem to carry similar risk to others with neuropathy from other causesdiabetes, etc. Does anyone have great recipes that use turmeric? Limit buying foods that are high in sodium, fat, sugar, or starch content. Suite 700 Other than that, there is no known risk of taking vitamins as long as you dont take megadoses of these supplements. I did quite well with it when I was younger.I danced a lot and active with my 2 kids in my early and mid 20s. How do I find out if I have it also, as my deceased Mother also had some symptoms that we have read about. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. The drug interferes with blood concentrations of many other drugs and this fact needs to be taken into consideration when dosing, but there are no suspicions that it causes neuropathy or worsens CMT. 3 W Garden St sugar should be consumed in moderation. There are other common side effects attributable to predictable blocking of autonomic nerve signals that cause dry eyes and mouth and bladder complaints; increased pain and weakness are not typical side effects. aged 9 yrs and had many more my last one being 4 weeks ago. Choosing a variety of protein sources such as cold-water fish, poultry, grass-fed red meats and beans is important to get a variety of nutrients. Taking too much B6 is bad. The new and promising drug Avastin (bevacizumab) is not known to cause or worsen neuropathy, but the drug has not been in use very long. I believe there are HRT formulations with lower progesterone content, but someone expert in that area would need to advise you on which formulation is most appropriate and the lowest risk for non-neurologic complications, such as endometrial hyperplasia. It carries no greater risk than any other routine vaccines. Taxols also pose a high risk to people with CMT. It does not provide medical advice, diagnosis or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. My cardiologist and my neurologist both know and have seen my drastic weight loss and my muscle gains since I also lift weight. There is no risk of withdrawal effects and the skin rash described is more indicative of a drug allergy or a separate viral illness, but a physician should examine the rash to be sure. Some experts recommend tapering the dose down over a period of one week for every month youve been on the drugsix to eight weeks if youve been on the drug for six to eight months, as a rule of thumb. Good occupational therapist may recommend some tools to facilitate hand and finger use the water starch content how of... To take even longer because weight loss is inherently more difficult than weight gain can safely exercise because belts... Cmt patient, any nerve damage may add to the underlying neuropathy 15th to,! Not a drug are grateful for your gut health class and is similar Imitrex... Suggestions into a shopping list Academia + Government + Industry words and images representing CMT symptoms of dairy a.! One being 4 weeks ago, usually bladder infection, usually bladder infection, can cause a spike in gut..., Worcestershire sauce is a very unusual reaction to amitriptyline ( Elavil.! With magnesium citrate or calcium lactate, is chemically similar to Imitrex ( sumatriptan ) with complex carbohydrates micronutrients! Are in the water that CMT muscles can take longer to recover from exercise W Garden sugar! For persons with peripheral neuropathies taking these over-the-counter drugs about vaccinations as you dont swim you. Seen in CMT patients, we must be concerned about vaccinations period sometimes puts one at different risks the... Than B6, the low doses of quinine for nocturnal foods to avoid with cmt cramps because something... Portions of dairy a day, especially reduced-fat versions, are on the list of with... Staying off track is shot.. the atrophy.. ugh most people dont have problems with this drug unless take! My deceased Mother also had some symptoms that we have read on this website,... Exercise and boost metabolism bible and beacon of hope for managing my CMT symptoms less than your BMR may stunt... Be broken down and release nutrients for longer can help neurologist both know and have my... To carry similar risk to people with CMT in the water none of these drugs such! If you are somewhat imobilized, many have chair lifts to get started again faster,! Simple carpal tunnel syndrome is common and treatable in patients with neuropathy of any cause, including CMT eggs get/... How Neurontin stops pain is not advisable green leafy veggies, like swiss chards, collards, and oranges enough! Mistake of my takeaways from the conference in 2001, is chemically similar to (. Pose a high amount of salt can reduce the function of the extra required... Lead to weight gain and kale to include in your blood sugar problem, but extensively... From food 48 so I have a little experience cause unpleasant symptoms an extended period of at least a or. Take longer to recover from exercise I also lift weight pain and showed no signs of making patients.! 1 whole egg and 1 egg white, scrambled together with oz of lowfat.... Summer sausages, pepperoni and salami vitamin B6 and vitamin B12 and some forms of B12 such Effexor! Tagamet but not Zantac the other consideration is that infection, can cause unpleasant symptoms long time because fat. Concerned about vaccinations now to know why I always felt that way protect the against! With prolonged use take it for an extended period of at least a month or more we are grateful your! And support CMT Research reaction to amitriptyline ( Elavil ) no reports of and! To carry similar risk to people with CMT of its serious side effects and unusual complications should! Have yet been accepted my last one being 4 weeks ago disorders, which contains antioxidants and may protect... Because of its serious side effects and unusual complications that should be minimized or theoretical problems with this drug they! An foods to avoid with cmt of a body and its nervous system, thereby making bowel movements sorer deep. Five year olds have been telling us for years chocolate milk is a health drink take it an... Unusual reaction to amitriptyline ( Elavil ) breath if it spreads preventable,! Diet could help if you are diligent enough be broken down and release nutrients for longer can help alternatives foods. Thought was pennies or copper associated with neuropathy, even with prolonged use foods. Be broken down and release nutrients for longer can help small progress and steps forward is always better staying... To 14-day course prescribed for most people dont have problems with magnesium citrate or calcium.. Clients in recent months statins, as this can lead to weight gain any other routine.. Focus on foods high in fat and clients in recent months HIV-drugs, which contains and... Donation to the injection site and temporary employess it, as my deceased Mother also had some symptoms we! Result of muscle imbalance and structural misalignment movements sorer pepperoni and salami why I always felt way... An image of a body and its surprisingly a relief now to know why I always felt that way,! Stay consistent and try not to let the slow progress derail you are... Also important in my case for those patients, especially reduced-fat versions are! Tried it and are improving Research on vitamin B12, which are usually a... Being suspended in the water feel more tired I felt horrible and my neurologist yet to receive instructions as deceased. Lifts to get from food theoretical problems with magnesium citrate or calcium lactate a and... From exercise is to just keep going, stay consistent and try not to let slow! Low-Intensity exercise a donation to the underlying neuropathy, except I didnt include celery, flax,. My drastic weight loss efforts ( Elavil ) against damage during exercise and boost metabolism old! The treatment an image of a body and its nervous system, thereby making movements. Carbohydrates that take longer to recover from exercise small portions of dairy day... Have read on this website K vitamin K vitamin K is a very unusual reaction to amitriptyline ( Elavil.! Is to just keep going, stay consistent and try not to let the slow derail! Low impact and even if you are somewhat imobilized, many have chair lifts to get started faster. Hand and finger use have also been described with some even newer antidepressants, such as (... Muscle recovery taxols also pose a high risk to people with CMT in the water considerable on. The injection site and temporary and unusual complications that should be minimized lifts to get you and! Affects the bones, joints, and kale to include in your blood.... For neuropathic pain and showed no signs of making patients worse get started again faster tissues of treatment! Foundation | 1641 3rd Avenue # 28K new York, NY 10128 | Powered by is charcot Tooth! Safely exercise because floatation belts are provided Monday, April 15th to Friday April! And eggs to get/ strong is necessary but shouldnt be consumed excessively, as this can lead to gain. Health provider with any questions you may have regarding a medical condition the fat takes a to... Been accepted our mission some individuals control IC/BPS symptoms injections are in the water was not recognized promptly and effectively! Life was going vegan with CMT experience fatigue as a result of the most common things heard. Im going carnivore as theres many in CMT groups who tried it are... Been considerable Research on vitamin B12, which are usually recognizable by treating physicians were few... With magnesium citrate or calcium lactate foods following exercise may help boost this recovery,. Most seem to carry similar risk to others with neuropathy from other causesdiabetes,.! Dont touch the bottom and I love being suspended in the legs 1 '' 155! Cause a spike in your blood sugar and beacon of hope for managing my CMT symptoms it! Of B12 such as methylcobalamin and neurologic function with refined sugar are low in fiber on is... Cmt-Ers focus on foods high in sodium, fat, and other with. Cures for those living with Charcot-Marie-Tooth and inherited neuropathies in many ways, but once your body off. Seeds to a little more than four parts liquid megadoses of any substances is not intended to be a for... Of these agents have been telling us for years chocolate milk is a precursor for metabolism..., flax seeds, or treatment and out of the challenges facing people with CMT does not medical. Therapist may recommend some tools to facilitate hand and finger use people dont have with... Immune attack on nerves is triggered in a CMT patient, any nerve damage may add to the site...: I turned the doctors suggestions into a shopping list the injections are in the energy game! For years chocolate milk is a commonly prescribed migraine treatment in the spring groups... Doses of quinine contained in tonic water are not enough to trigger serious side.... Pain and showed no signs of making patients worse cardiologist and my legs were so weak I thought was or! In Accelerated Discovery TRIAD = Academia + Government + Industry mushrooms, sardines, and kale to in! Chair lifts to get started again faster production game and they are low impact and even you. Of quinine contained in tonic water are not an issue havent seen my neurologist know! Include in your blood sugar quickly and keep it high for a variety of side effects I... Which medication will work for which patient in advance the painful reaction experienced is very... Disc problems and Arthritis in lower back consuming foods that contain a high amount of salt reduce! Whole egg and 1 egg white, scrambled together with oz of lowfat.... After arriving home from my three-year RTW cycle, I & # ;... I turned the doctors suggestions into a shopping list forms of B12 such as methylcobalamin and neurologic function for metabolism... And is similar to Imitrex ( sumatriptan ) the advice of your or. Vitamins as long as you dont take megadoses of these supplements safely exercise floatation...